Tuesday, February 21, 2012

Baby Gussy Update: Hearing Aids, Vision Improvement, and Fundraising, Oh My!!

"Mamma, Can I just say this camera business is getting a little old!"

Wowza! It's been a while since I sat down and really updated everyone about Gussy!  I know I need to be a bit better about this and I really will try harder! So much has been going on since Mr. A's Last surgery! The improvements he has been making are amazing! Glory to God! He is now able to keep his food in his tummy! Yay God! And he's growing now!!! Yay God!!!! Within weeks of being home his little puddin' head grew 4 cm!! 4 cm!!!! That is FABULOUS!!!! But even more fabulous then that, His little chest is sooooo much flatter than it was! Already!!!! His respiratory status has improved AMAZINGLY so!! As a matter of fact, (Are you ready for this?) he's doing so much better with his breathing that we have been able to, for now at least, stop using our night nursing!!!! YAY GOD!! We loved our nurses but it has been soooo very good for our family to be able to have our space again for a while!! We also made our way back to church last Sunday!!! Oh what a blessing it was to be fed spiritually!!! Praise God!!!

The day we have been waiting ever so (kinda, sorta) patiently for has arrived!!! Gussy got his hearing aids! WOW, WOW,WOW!! What a difference! As soon as he had them in, I said hello to him and he turned and looked at me in wonder! It was a precious moment that I won't forget any time soon! I wasn't able to get the first encounter with hearing aids on film but I was able to get a later, super cute moment on film! My cup runneth over y'all, my cup runneth over!

It seems as though the most common question we get is about Baby A's vision. We are thrilled to report that the improvements in that area are PHENOMINAL!! So good as a matter of fact that his therpists now say "He is such a good tracker!" If only the old therapists who saw him when his eyes were still fixed and dialted could see him now!! It's one thing that they don't even really work on now because he does it so well! YAY GOD!! Because it was always a matter of how his brain interpreted what his eyes were seeing, we didn't know what would happen. It can go one of two ways; that pathway will form or it won't. IT DID!!! YAY GOD!  We are happy to report that his vision is in pretty darn good shape!! Glory to God!

We've also been working on fundraising for a very promising therapy in Los Angeles, California. It's a three week intensive therapy program called Cuevas Medek Exercise or CME along with Hyperbaric Oxygen Therapy or HBOT.  You can check out our "Help Gussy Get Therapy" Page to learn more about our fundraising efforts and the therapies we are hoping to do!! We are so thankful for all of the support we have recieved! Financial, spiritual, and emotional! We are surrounded by amazing people who have truly showed us the love of Christ! Please keep praying for us! We have been so blessed by all of the prayers that are being said on our behalf!

Living In His Mercy,

The Tannehill's

It's New Years Eve and I'm a party animal!